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Network Meeting - 12 March 2026


TOPICS


The networking meeting of the 9th of December covered the following topics:


  • Welcome

  • Introductions

  • Update (Barend)

  • FAIR Solutions – Starter Kit

  • SureSync – Starter Kit

  • Parking lot & close


SUMMARY


Introduction - Barend Mons


LIFES delivered three documents for the Center of Excellence Data Sharing and Cloud (CoE DSC): a general introduction to FAIR data visiting, a practical implementation guide focused on data stations, and a guide on data semantics. Together these form the FAIR Implementation Guidance, now available to members. FAIRification decisions are structured around five dimensions: ambition level, FAIR maturity, data types, infrastructure, and training needs — with maturity modeled as a progression from personal use to fully machine-actionable data visiting.


The FAIR for All Trust Fund enables data-intensive companies to sponsor FAIR data stations at hospitals, research institutes, and other data-rich organizations that cannot currently share data through conventional means. Stations are designed to become financially self-sustaining over time through data visit charges. A FAIR data point publishes metadata to multiple harvesters simultaneously; a FAIR data station goes further by enabling actual data interaction — running queries and algorithms against the data — governed by a traffic-light access control system.


LIFES Starter KIT presentation - FAIR Implementation Guidance by FAIR Solutions 


FAIR Solutions offers a structured four-to-eight week engagement for organizations new to FAIR, targeting management and decision-makers. A first phase covers FAIR maturity assessment, ambition-setting, infrastructure mapping, and matching with LIFES-qualified service providers. A second hands-on phase focuses on a specific use case and prepares a sandbox pilot plan. The philosophy is a "fair enough" approach: start with a realistic ambition level and grow from there. FAIR Solutions operates independently of any station vendor, in keeping with LIFES's neutrality principle.


LIFES Starter KIT presentation - SureSync Data Station by SureSync 


SureSync offers a data station as a fully managed service, based on open standards and interoperable with stations from any compatible vendor. Data remains within the organization's own domain; the station is a bolt-on layer that governs how data is made findable and visitable without transferring data custody. The default mode is data visiting rather than copying, with access governed by a traffic-light system. SureSync is already operational within the KIK-V program in Dutch long-term healthcare and is piloting with six organizations representing over 11,000 staff and 20,000 patients and clients.








 
 
 

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